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Jonathan (Tetralogy of Fallot) - Louisiana Pediatric Cardiology Foundation

Jonathan (Tetralogy of Fallot)

At twenty three weeks pregnant, my wife and I were told that our baby had a heart defect called Tetralogy of Fallot, which is a complex cardiac defect that occurs in approximately two out of every 10,000 babies. My wife and I immediately felt terrified, confused and alone.

The expertise of both Woman’s Hospital and The Pediatric Cardiology Associates was our guiding force. Because of the early diagnosis, my wife and I were able to prepare for both his upcoming birth and surgery through research and the expert advice of our doctors. Through the assistance of Dr. Michael Brumund of The Pediatric Cardiology Associates, we were also able to seek counsel with local Baton Rouge families who have experienced similar circumstances with their children. Together with Dr. Brumund, my wife and I researched and decided on the best possible medical care for his heart condition.

Baton Rouge does not have a pediatric cardiovascular surgeon, so most of the local children have surgery in New Orleans or out of state. Jonathan had his heart surgery at Children’s Hospital Boston, one of the nation’s top hospitals specializing in pediatric care. Many of the local affected families do not have the adequate financial resources to cover the expenses incurred with heart surgery. The Louisiana Pediatric Cardiology Foundation was formed to help these Louisiana families. The Louisiana Pediatric Cardiology Foundation is a non-profit organization which provides support to children suffering from cardiac disease and their families. The organization also serves to help in the advancement of the practice of pediatric cardiology and provide state of the art medical equipment in our region. The continued education in the area of pediatric cardiology will help local families with heart disease.

Jonathan had heart surgery on June 6, 2007 at Children’s Hospital Boston. We returned back to Baton Rouge on June 13th. We continue to monitor Jonathan’s recovery through the care of Dr. Brumund. We are fortunate enough to have been able to send Jonathan to Boston, and feel every child in Baton Rouge deserves this same option. Through LPCF, we can help make this a reality. And hopefully one day Baton Rouge will have its own Children’s Hospital Boston.